Monday, November 29, 2010
Annual cardiologist visit
We woke early to a snow filled valley and hustled our best to Primary Children's. Today Taylor received an Echocardiogram and a exercise test. The Echo took about 1 1/2 hours and I must say T was so patient and well behaved. Towards the end she was laying on her back with pillows shoved under her neck head bent back eyes staring at the wall behind her... needless to say UNCOMFORTABLE. The whole time the tech was pushing the machine into her lower neck not a word not a squirm not a complaint. The minute he left she burst into tears of neck pain and the inability to breath. this kinda cracked me up and I told her no one will ever know you are in pain unless you tell them. Sweet girl was giving her all to toughness. Her Echos have looked the same for the past few years. The left ventricle of her heart is enlarged due to overcompensating for her valve (which is what will someday be replaced.) This is not great but the funny thing is she always passes the exercise test easily. The Dr always says it's just super unusual for an echo to look that bad but the exercise results look good. So long story short we will e scheduling an MRI soon and it will tell a lot more about the potential time frame for surgery. But today was great and fun to be able to Spend nearly a whole day with Bryson, Taylor and Myself. We are so thankful for all the Lord has done to watch over our family and especially T's little heart. She truly is a sweet heart! Every time we visit Primary's I am reminded of many things the first surgery where we nearly lost her and the incredible purpose Taylor has here on earth. And that no matter what we are so blessed, there are so many who struggle with so much.